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Dit artikel is een vertaling van Al je medische gegevens opslaan bij Google of Microsoft? Ik dacht het niet!

In the Netherlands we are already trying several years to do something with electronic health records. The dutch council for health (Raad voor de Volksgezondheid) wrote in 2005 that it would be a very good idea to introduce national electronic health records. The national electronic medication records had to be ready in 2006, but they are still not available. Not only in the Netherlands people are busy creating electronic health records. This weeks the medical blogosphere buzzes with the ideas of Google and Microsoft to start electronic health records.


ghealth1.pngThe New York Times wrote an extensive article about the potential ideas of Google and Microsoft. And also the first screenshots of the Google application are available on the internet. But is it a good idea to store your medical data at Google or Microsoft.

Every story has different viewpoints. This is also applicable to the electronic health records. What is a doctors’ opinion about this? What can a physician with it? For a doctor it is great to be able to view to most up-to-date data of a patient 24/7. But in the Netherlands the law writes that a doctor cannot view the patient data without a proper indication. A doctor can only look at that part of the patients’ data that has a relation with the medical problem he sphysicianhows up with. So, if a patient presents himself with a sore toe, the doctor should not that the patient is treated for a VD last week. At this moment this is not implemented in the systems of the hospitals. It is a technically difficult to implement. How does the system know what information is relevant for a problem? If your toe is inflamed your physician may see your paracetamol use, but not your viagra use.

But why do we do this so difficult? Why do we protect the privacy of people in such a way in the Netherlands? You could say that a doctor always needs all information, because a physician needs the total overview to treat the patient in a correct way. It is possible for a physician to view all information if the patient gives his consent (opt-in).

But is it all so great for physicians, these electronic health records? Not everybody thinks so. Especially if patient can have access to their records. Google even proposes that patients should be in charge of their health information.

At Google, we feel patients should be in charge of their health information, and they should be able to grant their health care providers, family members, or whomever they choose, access to this information. Google Health was developed to meet this need.

A patient in charge, how terrible. That is what Graham van Over my med body! writes:

Patients without medical training but that actually understand all the nuances of their diseases and medications, I applaud you; most of your fellow patients, however, don’t. I strongly advocate for patients to read and learn as much as they can about their diseases and drugs they take, but this [to put patients in charge of their medical data] is not the way to go about it.

Would a dutch patient change things in his records that a physician added? At first you would say no. But there are nuances. A dutch patient has the right to remove certain data from his records. He does not need the permission of a physician to do this. The physician can charge the patient a reasonable fee for this removal. Besides this it is possible to change records if the physician agrees. So dutch patients already are to some extent in charge of his medical records. He has the possibility to change or remove records.

But what about the patient? What does he think about it? It is great for the patient, because he does not have to tell his story every time. The physician just has to look at his records and the physician knows all. So the physician is able to treat the patient in the best way. Also the patient has a direct overview of his relevant and possibly less relevant medical information.

CPB en NENBut who is the owner of the medical data? What can a physician do with this data? These questions are even more complex if a third party stores the medical data. How about the privacy of a patient? Several governmental parties are involved in this. We have the College for protection of personal data (College ter Bescherming van persoonsgegevens). They have written a tutorial (in dutch) how and when personal data may be exchanged. And a there a norm Securing health data. This norm is so strict that no dutch health institution meets the conditions.

But what is the relation all this with the title of this article : Store my medical data at Google or Microsoft? I don’t think so! From different viewpoints it seems an extremely good idea to share your medical data with your physician(s) at all times. But the important aspect in the last sentence is the sharing with physicians. Off course physicians cannot organize their computer infrastructure anymore. So I do not mind that certain computer specialists have access to my personal medical data under strict conditions. But to give Google or Microsoft access to my medical data? I don’t think so! I have no idea about the intentions of Google and Microsoft, but making a lot of money.


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2 Reacties op “Store my medical data at Google or Microsoft? I don’t think so!”

  1. Etienne zegt:
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    Even if Google, or Microsoft’s intentions were totally honourable, the risk of disclosure of your data will always be unacceptably high.

    The IRA once said about their bombing campaign “You have to be lucky every time, we only have to get lucky once”. The same is true of data security. The bad guys only have to get lucky once. And your data has to remain secure for the whole of your life, which you hope will be a good long time.

    So, the only way to have the benefits of your health data on-line and the assurance of security is to ensure that the data is held totally anonymously. OpenHealthRecord does this and proves the point by making all the data it holds open and accessible to anyone. Because OpenHealthRecord does not know who you are, and because none of the records that belong to you can be linked together, your data is immune from any kind of direct security breach.

    You might not choose to trust Google or Microsoft with your data. Would you choose to trust OpenHealthRecord with it?

    80n

    Zou u dit commentaar, indien u dit nog niet gedaan heeft, willen beoordelen?
  2. Jan zegt:
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    I would say that OpenHealthRecord is a good start. If you want to store your medical data online then storing them anonymously is the way to go.

    But how anonymous is it to store it online? Your ip-address is logged. Your internetprovider has access and can even reproduce the pages you have visited. And if you visit plain http-pages it is very easy to break into your session. You can prevent this by using an SSL-connection.

    And OpenHealthRecord uses e-mail to send you your lost key. That’s not a safe way.

    And everybody can access records by trying to emulate keys. It is not that hard to create a program that automatically creates keys. By doing this you can obtain very interesting data. You have no idea who is the person behind the data, but then again. Do I want my anonymous medical data to be used in this way?

    So to conclude with what I started with. I think OpenHealthRecord is a good start, but a lot needs to be done before I am willing to store my medical data online. For now I would prefer a personal USB-stick or something like that. It makes me responsible.

    Maybe we should offer both solution to people?

    Zou u dit commentaar, indien u dit nog niet gedaan heeft, willen beoordelen?

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